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What does it mean to personalise cancer medicine? Drawing on an ethnographic study with cancer patients, carers and practitioners in the UK, this book traces their efforts to access and interpret novel genomic tests, information and treatments as they craft personal and collective futures. Exploring multiple experiences of new diagnostic tests, research programmes and trials, advocacy and experimental therapies, the authors chart the different kinds of care and work involved in efforts to personalise cancer medicine, as well as the ways in which benefits and opportunities are unevenly realised and distributed.
Comparing these experiences with policy and professional accounts of the ‘big’ future of personalised healthcare, the authors show how hope and care are multi-faceted, contingent and, at times, frustrated in the everyday complexities of living and working with cancer.
An electronic edition of this book is freely available under a Creative Commons (CC BY-NC-ND) licence.
Anne Kerr is Professor of Sociology at the University of Glasgow
Choon Key Chekar is a Senior Research Associate at the University of Lancaster
Emily Ross is a Research Fellow at the University of Edinburgh
Julia Swallow is a Wellcome Trust Senior Research Fellow in Humanities and Social Sciences at the University of Edinburgh
Sarah Cunningham-Burley is Professor of Medical and Family Sociology at the University of Edinburgh
Introduction: Exploring personalised cancer medicine
1 Personalising cancer treatment and diagnosis through genomic medicine
2 Genomic techniques in standard care: Gene expression profiling in early stage breast cancer
3 Molecular profiling for advanced gynaecological cancer: prolonging foreshortened futures
4 Optimising personalisation: Adaptive trials for intractable cancers
5 Genomics at Scale: Participation to build the bioeconomy
6 Going Private: Digital culture and personalised medicine
7 At the limits of participation
Conclusion: Future crafting
Bibliography
Index