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This book is a powerful addition to a developing literature informed by arts and humanities research carried out during the COVID-19 pandemic. Investigating the impacts of crisis governance and decision-making on people and populations, the book brings together microbial organisms and humans, children and data, decision-making and infection prevention, publics and process, global vaccine distribution and citizens’ juries. Through its eight chapters, the book stimulates broadly-drawn discussions about exceptional executive powers in an emergency, the role of trust, and the importance of the principles of good governance – such as selflessness, ethics, integrity, accountability and honesty in leadership. The lessons drawn out in this book will support future decision-makers in both ordinary times and extra-ordinary emergencies.
An electronic edition of this book is freely available under a Creative Commons (CC BY) licence.
Introduction – Melanie Smallman and Caroline Redhead
1 The epidemic as a life event: Epidemicity and epidemic form - Lina Minou, James Wilson and Daniel Herron
2 Relationships were a casualty when pandemic ethics and everyday clinical ethics collided - Caroline Redhead, Anna Chiumento, Sara Fovargue, Heather Draper and Lucy Frith
3 Evaluating post-pandemic plans for social care data infrastructures – Cian O’Donovan
4 Data ethics in an emergency - Melanie Smallman, Cian O’Donovan, James Wilson and Jack Hume
5 Data-driven decision-making beyond COVID-19: Incorporating the voice of the child – Claire Bessant and Rachel Allsopp
6 Where are publics in pandemic public policy? – Jamie Webb and Kiran Kaur Manku FRSA
7 From a crisis of confidence towards confidence in a crisis: What can we learn about the pandemic’s impact on democracy? – Reema Patel
8 Accountability, transparency, and good governance: The WHO’s decision making during an emergency – Harry Upton, Abbie-Rose Hampton and Mark Eccleston-Turner
Index